My story with exstrophy begins in a small country located in eastern Africa called Uganda. Uganda is commonly referred to as…
Read MoreLiving with bladder exstrophy in Uganda: Johnson’s story continues
The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…
Read MoreLiving with bladder exstrophy in Uganda: Rachel’s story
A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living…
Read MoreGood News From Uganda!
With every bladder exstrophy patient there is a story of resilience and hope. A new chapter of young Ugandan Ndyabagye…
Read MoreSeven-year-old Johnson finally gets a chance at healing
At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers.…
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