When seventeen-month-old Annette was first born with bladder exstrophy, her mother assumed her condition was fatal. “I did not understand…
Read MoreFailed Primary Exstrophy Closure Webinar Recording
Dr. Gearhart provides details about what makes a successful primary exstrophy closure, why some closures fail, how to prevent failed closures, the types of failures and the treatment of failed closures.
Read MoreWebinar: Long Term Management of Bladder Exstrophy
Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management.
Read MoreBE Informed about Catheters launches with Assessment and 8 Healthy Habits
Catheritization or “cathing” is a fact of life for many bladder exstrophy patients. The topic triggers many questions and concerns…
Read MoreTimes of India features story of cross cultural support from young patient
“…a five-year-old abandoned Ugandan girl, born with her bladder outside her body, will undergo surgery with the help of funds…
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