Comments for Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/ Supporting people affected by bladder exstrophy. Thu, 01 Sep 2022 20:37:48 +0000 hourly 1 https://wordpress.org/?v=6.7.1 Comment on Meet the Texas Bladder Exstrophy Support Group by Lisa Weaver https://www.bladderexstrophy.com/texas-bladder-exstrophy-support/#comment-97 Fri, 06 Mar 2020 14:49:57 +0000 https://www.bladderexstrophy.com/?p=2412#comment-97 Hello!! My family recently located from TN. Our 2 year old daughter was born with bladder extrophy and our new urologist told us about this group!! I was beyond excited as we could not find anything in TN. We relocated to Robinson right outside of Waco.
Please contact me so my family can be a part of this group!!

]]> Comment on Living with bladder exstrophy in Uganda: Rachel’s story by Help Us Meet the Challenge | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/uganda-rachel/#comment-74 Thu, 29 Aug 2019 02:00:18 +0000 https://www.bladderexstrophy.com/?p=3080#comment-74 […] you’ve been following our work in Uganda, you may remember Rachel. Rachel had spent the first 15+ years of her life in a small room on a dirt floor, wrapped in a […]

]]> Comment on A-BE-C is Excited to Announce Newest Additions to Advisory Board by Homepage https://www.bladderexstrophy.com/a-be-c-is-excited-to-announce-newest-additions-to-advisory-board/#comment-77 Fri, 24 May 2019 16:50:31 +0000 https://www.bladderexstrophy.com/?p=3269#comment-77 … [Trackback]

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]]> Comment on Bladder exstrophy in Uganda: My story begins with Solomon by A-BE-C to Better Serve Global Community With New Outreach Position | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/uganda-solomon/#comment-76 Tue, 21 May 2019 01:49:13 +0000 https://www.bladderexstrophy.com/?p=3103#comment-76 […] son Solomon was born with cloacal exstrophy and the family has been featured on our website. David and his wife Mary were tenacious in finding the best care for their son. They continue to […]

]]> Comment on Seven-year-old Johnson finally gets a chance at healing by Living with bladder exstrophy in Uganda: Johnson's story continues | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/seven-year-old-ndyabagye-finally-get-a-chance-at-healing/#comment-67 Tue, 13 Nov 2018 02:02:36 +0000 http://abec.wpengine.com/?p=2219#comment-67 […] may remember first reading about him in 2016 as an untreated bladder exstrophy patient in constant physical pain. After two successful surgeries, last year’s “good news” post reported Johnson […]

]]> Comment on Bladder exstrophy in Uganda: My story begins with Solomon by Bladder exstrophy in Uganda: Undying hope and a long journey for treatment | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/uganda-solomon/#comment-75 Tue, 13 Nov 2018 02:02:17 +0000 https://www.bladderexstrophy.com/?p=3103#comment-75 […] Janet Gibson, A-BE-C’s Uganda Global Care Liason and Board Member and Tair, Ibriham’s father share their reflections on Ibriham’s journey with bladder exstrophy. […]

]]> Comment on Understanding Bladder Exstrophy by | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/understanding/#comment-80 Fri, 06 Jul 2018 22:42:08 +0000 http://bec.nballa.com/?page_id=19#comment-80 […] find out more about the latest in care for bladder and cloacal exstrophy, visit the A-BE-C education pages or join us on Facebook and […]

]]> Comment on Understanding Bladder Exstrophy by 8 U.S. children's hospitals are best-in-class for bladder exstrophy | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/understanding/#comment-79 Fri, 06 Jul 2018 22:27:28 +0000 http://bec.nballa.com/?page_id=19#comment-79 […] Learn […]

]]> Comment on Understanding Bladder Exstrophy by 8 U.S. children's hospitals are best in class for bladder exstrophy | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/understanding/#comment-78 Fri, 06 Jul 2018 22:16:56 +0000 http://bec.nballa.com/?page_id=19#comment-78 […] find out more about the latest in care for bladder and cloacal exstrophy, visit the A-BE-C education pages or join us on Facebook and […]

]]> Comment on Seven-year-old Johnson finally gets a chance at healing by Good News From Uganda! | Association for the Bladder Exstrophy Community https://www.bladderexstrophy.com/seven-year-old-ndyabagye-finally-get-a-chance-at-healing/#comment-66 Wed, 25 Apr 2018 14:29:08 +0000 http://abec.wpengine.com/?p=2219#comment-66 […] may recall Johnson was featured in a post in November of 2016 (Seven-year-old Ndyabagye finally gets a chance at healing). Back then he was preparing to travel to India with his mother for his first surgery to treat his […]

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