Imagine a room filled with 51 of the world’s top pediatric urology specialists, all gathered with a single mission—to transform the lives of children born with bladder exstrophy. That’s exactly what happened at CIVIL Hospital, as it proudly hosted the 2025 International Bladder Exstrophy Collaborative (IBEC) Conference!
Read MoreAn Exstrophy Journey to India
Rachel Althizer is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Ahmedabad, India, as a social worker to assist children and families with exstrophy as they prepare for surgery.
Read MoreKeep On Keeping On
We recently had the rare opportunity to get some words of wisdom from Australian, Tom Flood, who was born in 1930 with bladder exstrophy. In those days, very little was known about bladder exstrophy and no treatment options were available. His parents were told that Tom was not expected to survive and if he was not in pain, just to leave things as are. But Tom had other plans!
Read MoreA-BE-C Partners with Physician Group to Raise over $500,000 to Aid India in Their Fight Against Covid
A-BE-C has teamed up with a group of physicians in a coordinated effort to send much needed oxygen concentrators to partner hospitals in major cities in India, to aid in their continued fight against Covid. India is experiencing the world’s worst outbreak, with 400,000 new cases each day.
Read MoreThe US-India Bladder Exstrophy Collaborative
Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.
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