My story with exstrophy begins in a small country located in eastern Africa called Uganda. Uganda is commonly referred to as…
Read MoreSeattle Children’s and A-BE-C publish results of study surveying adult men with bladder exstrophy
Researchers at Seattle Children’s Hospital in collaboration with Association for the Bladder Exstrophy Community (A-BE-C) recently published results of a…
Read MoreLiving with bladder exstrophy in Uganda: Johnson’s story continues
The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…
Read MoreLiving with bladder exstrophy in Uganda: Rachel’s story
A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living…
Read More“Super intern” Misty Blue Foster sees exstrophy as both patient and professional
As a bladder exstrophy patient and Master of Public Health candidate, Misty Blue Foster sees exstrophy from both sides of…
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