Reflections from Smith – A-BE-C Volunteer, Social Worker 

The Association for the Bladder Exstrophy Community in collaboration with Uro Care Hospital, has been supporting children born with bladder exstrophy in Uganda for the past several years. Three fortunate children from Western Uganda have had A-BE-C sponsored surgeries, one performed in India and two in Uganda. Nakwataho Smith is a social worker who has been an advocate for these children. Recently, he was able to visit Johnson and share more of his story and journey with this lifelong condition.

Johnson, now a grown up boy, looks so healthy and energetic. He told me, “he feels pretty fine.” He has not had any health complications for some time now. Johnson is still in school and progressing well, currently in primary three.

Life Changing Resources

Despite feeling well, Johnson’s greatest challenge since schools were opened was having access to resources, diapers in particular. Thanks to contributions from A-BE-C, Johnson was able to receive the necessary diapers and assured me he will focus at school. I was personally amazed and excited to hear about this, as his school progression is so important.  Johnson currently stays with only his mother (Jennifer) at home, as his siblings were taken in by relatives. Supporting the family financially has proven to be too difficult for Jennifer. 

Johnson and his mother appreciate the generous support they receive from A-BE-C. They will be forever grateful for the positive impact, restored hope, and care they continue to receive. They know they are not alone. Together, we can continue to help children like Johnson realize their greatest life purpose and potential.

Read All About Johnson’s Journey with A-BE-C