You Are Not Alone.
We Are Association for the Bladder Exstrophy Community
Association for the Bladder Exstrophy Community (A-BE-C) is an international support network for patients and families living with bladder exstrophy. We are united in our commitment to ensuring that all people affected by bladder exstrophy have the opportunity to realize their greatest life purpose and potential.
A-BE-C is working to make the highest standard of treatment available to all who are affected by bladder exstrophy. Whether you are a parent of a child or an adult with this condition, or a member of the medical community, A-BE-C is here for you.
2,400+
Members
59
Countries Represented
110K+
Funds Raised in 2023
3,700+
Facebook Followers
Our Why
OUR IMPACT
Stories from our community
A-BE-C Continues to Make an Impact in the US and
Around The World
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Check out the latest news from A-BE-C
Now Available: 2024 International Exstrophy Conference Videos
The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.
28 Oct, 20240
Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award
A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.
13 Sep, 20240
Building Community: Empowering Families Around the World
We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.
12 Sep, 20240
