For further information about the ABC, please contact us, or, better yet,
JOIN the network of others who are not just living with, but are dealing with
bladder exstrophy from all perspectives and in all phases of life. It is easy to join the ABC! Simply complete an online application via our secure server or print out and mail in your application today. Your Membership to the ABC Includes:
- "Living with Bladder Exstrophy"
This book is published by the ABC to provide insight into many issues facing the family and individual living with bladder exstrophy. "Living with Bladder Exstrophy" is free with your membership to ABC and $55 for non-members.
- Quarterly Newsletter
The ABC Update (online versions and archives available).
- ABC Wings of Hope
Access to our program to help financially challenged families with airfare to receive treatment.
- Access to the ABC National Directory
This annual directory includes personal information (name, address, phone number, primary hospital and surgeon, date of most recent procedure, and email address) submitted by members, their families, and healthcare professionals dedicated to caring for exstrophy patients. Check our Resources page for more info.
- Access to the "Members Only" Area on our website
This area hosts newsletter archives, exstrophy pictures, articles of interest, chat room access and webinars, members photo album, and more.
- Access to the ABC Bulletin Board/Listserve
An easy way to communicate online with patients and families dealing with exstrophy.
- Unlimited access to the resources of the ABC
- Discounts on all ABC publications
Who can benefit from joining ABC?
- Families of Newborns with Bladder Exstrophy
The excitement and anticipation surrounding the birth of a baby can give way to mixed feelings when bladder exstrophy is diagnosed. Although this is a rare birth defect, you are not alone. Let the ABC family help you tackle the issues and questions of this condition.
- Families of Children (or Young Adults) and Adults with Bladder Exstrophy
Living with bladder exstrophy is a lifetime challenge. Use the ABC network of families and adults to gather firsthand information from those who are dealing with problems much like yours. Tap into ABC resources to better cope with hospitalizations and the psychoemotional issues of bladder exstrophy.
- Families Who Have Members with Epispadias or Cloacal Exstrophy
Exstrophy is a spectrum of conditions, so individuals and families living with the other forms of exstrophy can also benefit from the strength and insight available through ABC.
- Professionals
Health care providers—physicians, psychologists, nurses, and allied health care specialists—can offer greater assistance to patients and their families by becoming well-informed about this condition. Membership facilitates networking with others who have a special interest in bladder exstrophy to stay current in this rapidly changing field of medicine. Institutional memberships are encouraged.
- Concerned Relatives and Friends
The ABC can provide insight into this condition, and your knowledge will help you to better assist your loved ones.
- Hospitals and Institutions
Many times, more than one professional in a hospital or institution would like to receive ABC Update and other benefits of membership. Up to 5 individuals can be listed under one membership.
ABC annual membership categories are as follows:
| Individual |
$25/yr* |
$100 for 5 years |
| Professional |
$55/yr |
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| Institutional/Hospital |
$250/yr |
groups of 5 or less |
| Sponsorship Fund |
A fund has been established to help financially challenged families become ABC Members. Contact admin@bladderexstrophy.com for details of this program. |
Fill out an application on-line on our secure server or print out and mail the application today!
If you would like to expedite your application, please call or email the ABC and you will be contacted within 2-3 business days of your email or phone call.
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