The Association for the Bladder Exstrophy Community

The Association for the Bladder Exstrophy Community (ABC), established in June 1991, is an international support network consisting of individuals with bladder exstrophy, parent-exstrophy support groups, and health care providers who work with patients and families living with bladder exstrophy.  We assist patients and families living with bladder exstrophy by providing education, support, and resources to help them navigate the medical and psychosocial issues relating to exstrophy.


A Story About You...
Eight page picture book written for the young child ages 3-6.
The Teen Survival Guide
Group discussion with a panel of teens and young adults lead by Dr William Reiner.
The Night Before
Short film by James Cole, based on his real-life experience with exstrophy.
This Is Me!
Help children ages 5 – 10  understand  exstrophy and prepare for social interactions.
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